Nystagmus Network

.. The Nystagmus Network is a registered charity in England and Wales supporting people living with Nystagmus.

Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition.

At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today.

The Nystagmus Network provides support and information and promotes a better understanding of Nystagmus through an annual Nystagmus Awareness Day on 20 June.

The Network funds research to find effective treatments.

Through its support services the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

Contact Website: www.nystagmusnetwork.org

Email: info@nystagmusnet.org

Tel: 01427 718093

Address: 6 Lancaster Gardens, Kingston upon Thames, KT2 5NL

Social media Linkedin: Linkedin.com/nystagmusnetwork

Twitter: Twitter.com/NystagmusUK

Facebook: Facebook.com/NystagmusNetwork

Instagram: Instagram/NystagmusNetwork

Nystagmus Awareness Day - 20 June 

Other Details

Costs

Details
Membership is available however not a pre requirement to access free support and information

Availability

Age Ranges
all
Referral required
No
Referral Details

We support all age groups free of charge. Self referral via telephone or email 24/7 support and advice on website 9-5 telephone support service

Contact details

Website:
https://nystagmusnetwork.org/
Contact name:
Sue Ricketts
Contact position:
Executive Information and Development Manager
Telephone:
01427718093
Email:
info@nystagmusnet.org
Notes:

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available,

Name:
Nystagmus Network
Address:
6, Lancaster Gardens Kingston upon Thames London KT2 5NL
Get directions
Notes

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available,