PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in 200 children suffer from this condition.

Resources for parents including diagnostic criteria and details of local support groups.

Resources for medical professionals.

Resources for teachers and schools' teacher training package.

Facebook group for parents/caregivers. Facebook group for young people age 12-17 with the condition. Facebook group for adults.

Links to further Research Advocacy and support from the charity.

 

Pans Pandas logo

Other Details

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Age Ranges
4 to 19.
Referral required
No
Referral Details

https://www.panspandasuk.org/for-educators

Direct payments
No

Contact details

Website:
PANS PANDAS UK
Contact name:
Paula Scott
Contact position:
PA to the Chair of Trustees & Community Support Executive
Telephone:
07425856181
Email:
paula.scott@panspandasuk.org
Notes

All of South Gloucestershire covered. We provide support via our Facebook group PANS PANDAS UK.