- What is palliative care?
- The providers of palliative care and end of life care
- How to access palliative care and end of life care
- Local services that are available
- National organisations
- Planning ahead for end of life
Palliative care provides support and treatment for anyone with a life limiting illness and their friends and family. A life limiting illness is an illness that cannot be cured. It can also be called 'life threatening' or 'terminal'. Palliative care aims to make you as comfortable as possible, helping you to manage your illness, including physical symptoms, and to give you a good quality of life in the time you have left. This can involve emotional, spiritual and psychological support for you, your family or carer. It can also involve social care, for example help with everyday tasks such as washing, dressing and eating.
Palliative care is not just for the end of life, it can be received at any stage in your illness, for example whilst you are receiving treatment aimed at controlling your illness such as chemotherapy or radiotherapy. Palliative care however includes end of life care for those nearing the end of their life.
Primary health care team district nurses and general practitioners are the main providers of palliative and end of life care in the community. Many other healthcare professionals also provide palliative care as part of their jobs. This can include care workers and social workers.
Palliative care can be provided in different places including in your home, in hospital, in a care home or nursing home, and in a hospice.
Some people need additional specialist palliative care. Specialist palliative care professionals will have training and experience in this area, especially managing more complex care problems. This care may be provided by consultants trained in palliative medicine, specialist palliative care nurses, counsellors or specialist health professionals such as occupational therapists or physiotherapists. Palliative care teams are made up of different healthcare professionals and can co-ordinate the care of people with an incurable illness.
Specialist palliative care services may be provided by the NHS, local councils or voluntary organisations.
If you are seeking palliative care or end of life care, speak first to your GP or health care professional to find out what help and support is available. It may be helpful to book a double appointment so you have time to discuss your concerns. This can include support for a family member or friend of the person who is ill.
If you are receiving care from a hospice or other local service, you may be able to get support from them. Even if you do not wish to have palliative care or end of life care, there is still support available.
The NHS website has further information on how to access support
The Palliative Care Home Support Service (PCHS) provides personal care and emotional support for patients who wish to be at home in the last 4 to 6 weeks of life. See North Bristol NHS trust for more details
Bristol Care Co-ordination Centre (BCCC) for end of life care co-ordinates the care for patients considered to be within the last 3 months of life.
St Peter’s Hospice is Bristol’s only adult hospice caring for local people with incurable illnesses. The hospice is committed to improving the quality of life for patients while extending care and support to their families and loved ones.
Marie Curie Cancer Care is a charitable organisation in the United Kingdom, which provides nursing care free of charge to patients and their families.
Macmillan are a cancer support charity offering end of life care and support to Cancer sufferers.
Advance care planning involves thinking and planning for your future care in the last stages of your life. You are able to let family, friends and health professionals know your wishes and plans for the future while you are able to do so. This can include treatments you do not want to have.
The Marie Curie website has detailed information on what an advance care plan involves and how to make one
The NHS website provides further information on planning ahead including how to make a will and how to legally appoint someone to make decisions about your care if in the future you become unable to make decisions yourself.